INTUIT: Interaction Design for Trusted Sharing of Personal Health Data to Live well with HIV

Prof. Lynne Coventry and Dr Liz Sillence

This EPSRC funded project seeks to identify and address fundamental Trust, Identity, Privacy and Security (TIPS) challenges faced by those managing stigmatised long term conditions including HIV in managing their health and interacting with care services, peer support networks, and private organisations. We will develop new tools providing people with opportunity and choice for managing the trusted sharing of their self-generated data with others. We will envision innovative service propositions that are grounded in a new empirical understanding of challenging but highly relevant contexts for sharing these data. INTUIT brings together experts in HIV Medicine, Public Health, Human Computer Interaction, Design, Health Psychology, Health Informatics and Applied Ethics with colleagues in Design at Northumbria but also Bristol University, City University, Edinburgh and UCL.

@INTUIT_project

Understanding the relationship between digital accumulation behaviours and GDPR

Personal data and its protection is a key feature of the new GDPR. This includes clear limitations on is collection, storage and use being outlined in law, but also requires disclosure of data breaches, for which a high financial penalty may be applied. Our research has demonstrated that the accumulation and failure to delete digital data is very common, and lack of individual and organisational awareness of exactly what data is being held, may lead to inadvertent lack of compliance with GDPR, and also have cybersecurity implications. In this project we aim to measure the extent of digital accumulation of personal data, and interview stakeholder employees and management to assess the extent of this issue, and how effective are current organizational attempts to address employee understanding and compliance. We also aim to gain insight into developing intervention strategies to encourage employees to think more carefully about email deletion, especially in relation to personal data.

DERC

The Digital Economy Research Centre is a collaborative project between Open Lab, Newcastle University and PaCT Lab, Northumbria University.

Going online for health: Noting changes over time

As part of an ongoing project PactLab researchers have used survey methodology to take a snapshot of e-health users every five years since the year 2000 in order to assess changing patterns of use and engagement with online health information and advice. A large scale questionnaire has allowed us to note changes in website use and to model the factors that predict trust in online health advice across a range of different user groups.

Online narratives and HIV risk perceptions

Starting in May 2016, Pactlab are involved with colleagues in Hong Kong examining the efficacy of using online narratives in changing HIV risk perceptions and behaviors among men who have sex with men in Hong Kong

CYBECO

CYBECO will research, develop, demonstrate, evaluate and exploit a new framework for managing cybersecurity risks, one that is focusing on cyberinsurance, as key risk management treatment. CYBECO integrates multidisciplinary research methods from Behavioural Economics, Statistics, Game and Decision Theory, Security Engineering and Behavioral Psychology in order to develop new concepts and models that are combined within a prototype software architecture (CYBECO Toolbox 2.0). CYBECO recognizes that the cyberinsurance domain is not adequately developed, partly due to the lack of sufficiently large statistical data sample and partly due to the difficulties customers face when deciding on their cyberinsurance investment options. CYBECO will address both these barriers, aiming at delivering advances clearly positioned beyond the State-of-the-Art. We plan to implement a prototype tool that will demonstrate and promote the CYBECO model and concepts. We then foresee to perform behavioural experiments to validate current institutional cybersecurity frameworks and to provide relevant policy insights, particularly in reference to behavioural nudges in cybersecurity. The CYBECO consortium is composed by complementary partners, coming from the addressed research, technological and market domains, that have a proven track record of high quality research capacity. Thus, the carefully structured workplan, embodies a holistic approach towards meeting the CYBECO objectives and delivering market-relevant outcomes of significant exploitation potential.

cSALSA

In the cSALSA project, we take a lifespan approach to studying how cyber-security is understood, and the attitudes and behaviours of people to cyber-security and risk.

The project studies cyber-security across three main life stages – amongst young people, those of working age, and older people. The research project focuses on how people’s attitudes and behaviours towards cyber-security and risk change across the lifespan in sync with their goals and aspirations, cognitive abilities and knowledge and ability to control and adapt their cyber-security behaviour.

Importantly, we recognize that neither cyber-security related behaviours nor life course development occur in a vacuum. Rather, they are part of a complex inter-play of individual characteristics, elements shared with others in a particular life stage, and the dynamic context in which the person finds themselves. These contexts include aspects of family life, organizational structures, cognitive capacity and knowledge, and social support networks.

Website: www.csalsa.uk